Extravaganza to benefit local boy

Wednesday, April 18, 2012 - 21:32
Kindergartner fights rare disorder

Area residents will get a chance to help one of their own when the Eagle River Elks Club hosts a special benefit for Ethan Fleetwood, a Chugiak Elementary kindergartner who suffers from a rare genetic disorder called neurofibromatosis (NF). 

According to the National Institute of Neurological Disorders and Stroke, NF is a genetic disorder that causes tumors to grow in the nervous system. According to his kindergarten teacher, Jennifer Carlson, Ethan underwent surgery on March 8 to remove several tumors. 

In order to help the family with its medical bills, Carlson is organizing an “Evening Extravaganza with Ethan” on Wednesday, April 25 from 6:30 to 8:30 p.m. at the club, which is located at Mile 1.5 Eagle River Road. The event will feature a host of activities, including karaoke, songs and stories by Eric Ode, silent and live auctions, a rock wall mural, face painting, a “noodle and doodle” station, board games, cupcake bingo and more. 

Anyone interested in donating an auction item can call Carlson at 742-3400 or email [email protected]. Additionally, anyone wanting to make a donation can do so at Key Bank, where an account has been set up for the family under account number 720153000925.

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